I thought that I would share a time table for those of you who are interested in the next few weeks at our house!
Benjamin goes into the hospital Monday on the 8th of September. He will be there a week. The first day we will be finishing the neurological psychological testing that he refused to finish the other day when we were at the hospital... BIG surprise that he refused to do something that was timed and scheduled...
The second day we will be having a PET scan of the brain. The third day we will be having the CT scan. That is what i know of the schedule as of now...After all of those test we will return to the room and they will try to stress out a seizure. I am not sure how hard they will have to stress him? He has seizures all of the time and we are not even trying to force them! Just taking a few less pills will make him preform like a well trained circus animal. I am sure they will get the information that they need. He will of course be having the video EEG the whole time we are there. We are scheduled to come home Friday on the 12th of that week.
After we come home we will have a meeting with the neurological surgeons around the week of the 22nd of September. At that time we will schedule the Phase 2 of the surgery. They tell us that we will be in sometime in October for the actual surgery. We are excited to be able to think about life with Benjamin seizure free! It seems like a miracle to even type the words let alone imagine what life will be like for him not having to take a million pills and worrying all of the time about where he is and if he is having a seizure. Always having someone with him, Abigail and Nathaniel are even used to him seizing they just yell to us from where ever they are and watch him to make sure that he is not falling and getting hurt until a bigger person can come wait and watch making sure that he is safe.
It is a wonderful time to be alive. Technology has improved so many things and hopefully in October I will report how it has changed his sweet life for the better!
Keep us in your prayers!