Sunday, August 31, 2008

Phase 1

I thought that I would share a time table for those of you who are interested in the next few weeks at our house!

Benjamin goes into the hospital Monday on the 8th of September. He will be there a week. The first day we will be finishing the neurological psychological testing that he refused to finish the other day when we were at the hospital... BIG surprise that he refused to do something that was timed and scheduled...
The second day we will be having a PET scan of the brain. The third day we will be having the CT scan. That is what i know of the schedule as of now...After all of those test we will return to the room and they will try to stress out a seizure. I am not sure how hard they will have to stress him? He has seizures all of the time and we are not even trying to force them! Just taking a few less pills will make him preform like a well trained circus animal. I am sure they will get the information that they need. He will of course be having the video EEG the whole time we are there. We are scheduled to come home Friday on the 12th of that week.
After we come home we will have a meeting with the neurological surgeons around the week of the 22nd of September. At that time we will schedule the Phase 2 of the surgery. They tell us that we will be in sometime in October for the actual surgery. We are excited to be able to think about life with Benjamin seizure free! It seems like a miracle to even type the words let alone imagine what life will be like for him not having to take a million pills and worrying all of the time about where he is and if he is having a seizure. Always having someone with him, Abigail and Nathaniel are even used to him seizing they just yell to us from where ever they are and watch him to make sure that he is not falling and getting hurt until a bigger person can come wait and watch making sure that he is safe.
It is a wonderful time to be alive. Technology has improved so many things and hopefully in October I will report how it has changed his sweet life for the better!
Keep us in your prayers!

4 comments:

Christine said...

Wow! Wow! Wow!!! I can't even imagine what it must be like for you. I am so glad, though, that there is a light at the end of the tunnel. Keep us posted. We will keep you in our prayers!

Stephanie said...

I am so glad to hear that the doctors might be able to help Ben. What a relief it will be on everyone in your family to be seizure free! You are always in our prayers.

Erin said...

I hope all goes well and the Benjamin will soon be seizure. Good luck and take care, we will keep you all in our prayers.

Marla said...

Sandra, you don't know me, but I am a friend of your mom's in Phoenix. This is such great news about Ben. I ask her about Ben everytime she and I talk. I pray this helps Ben become seizure free.
Saying prayers for all you in the coming months.

Marla